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Fibromyalgia Syndrome in an Amish Community: A Controlled Study to Determine Disease and Symptom Prevalence

KEVIN P. WHITE and JOHN THOMPSON

ABSTRACT.

Objectives.
To estimate the point prevalence of fibromyalgia syndrome (FM) in Amish adults and to compare the prevalence of chronic pain, chronic widespread pain, FM, chronic fatigue, and debilitating fatigue in the Amish versus non-Amish rural and urban controls. The a priori assumption was that, if litigation and/or compensation availability have major effects on FM prevalence, then FM prevalence in the Amish should approach zero.

Methods. We surveyed 242 Amish adults in a small rural community southeast of London, Ontario, Canada. Individuals were screened using a validated screening instrument. Those reporting chronic, widespread pain were examined for FM using published classification criteria. Amish results were compared to results collected in a random telephone survey of 492 non-Amish adults living in rural Southwestern Ontario and 3395 non-Amish adults previously surveyed in London.

Results. Pain lasting at least one week in the preceding 3 months was reported by 34.3% of the Amish; pain in the upper extremities by 25.4%, in the lower extremities by 22.5%, and in the trunk by 28.1%. Twenty-six (15 women, 11 men) reported chronic, widespread pain. Eleven FM cases were confirmed among women (age adjusted point prevalence, p = 10.4%) and 2 among men (p = 3.7%) for an overall age and sex adjusted prevalence of 7.3% (95% CI 5.3, 9.7); this was both statistically greater than zero (p < 0.0001) and greater than in either control population (both p < 0.05).

Conclusion. FM is relatively common among the Amish. (J Rheumatol 2003;30:1835-40)

Key Indexing Terms:

FIBROMYALGIA
EPIDEMIOLOGY
PREVALENCE
AMISH


From the Department of Medicine, Division of Rheumatology, and the Department of Epidemiology and Biostatistics, University of Western Ontario, London, Ontario, Canada.

K.P. White, MD, PhD, Assistant Professor, Departments of Medicine and Epidemiology and Biostatistics; J. Thompson, MD, Professor, Department of Epidemiology and Biostatistics.

Address reprint requests to Dr. K.P. White, Monsignor Roney Building, Division of Rheumatology, 268 Grosvenor Street, London, Ontario N6A 4V2, Canada.

Submitted August 14, 2002; revision accepted January 15, 2003.




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